Tuesday, March 10, 2009 11:11 PM
my damn computer closed out the page and i lost all the information i had written. so this will be a brief summary.
my body had an adverse reaction to the treatment i've been undergoing the last 6 wks. my dr. is very concerned - i mean like worried concerned- bc there has to be something really wrong for the treatment to do so much damage. basically- as far as fixin everything we've known that was wrong- there is nothing medically they can do anymore bc my body is rejecting all treatment.. so i just have to take a multivitamin everyday bc everything else is just making things worse-
so my mrsa is still active- but there is nothing we can try anymore but to let it run its course.
also, as my dr. was feeling my lymph nodes and my throat and everything - i was bitching and bitching and i said "fischer- idk wtf is wrong with me- but something serious is- this isnt the mrsa shit this is something really wrong- i feel like im constantly being weighed down by something extremely heavy- I have a weight on my chest that makes it hard it breath- (etc etc) and that's not normal" and he looked like just different than ever (i've gone to him for 22 years) - and he said "you're right kel, something is really wrong".... my spleen and all those things are inflamed- or whatever its called when they aren't working properly.
they took my blood bc they pretty much said at best i am severely anemic. however, there are a lot of other options- that are to say the least- unwanted. they are fairly certain my blood count is incredibly abnormal (too high/low red/white cells). Even the lab tech (who has been there as long as I've been going) started crying with me when she drew my blood. My doctors office is like family- actually my aunt works there so I guess it really is?
Anyway, I find out more tomorrow- and i'm going to submit this before i accidentally erase this one too. more details to come- but the only good news is i will probably feel better soon- its just i wont be better for a while.
Thank you all for your thoughts and prayers. It has been the most surreal unpleasant time of my life (and as a lot of you know I've had my share of ups and downs with health and other trials for sure)
Also, a big thank you to Kim Claire Lynch because today she is the only person that could get me to stop crying- I literally cried all day until I talked to her at like 11pm. We were both crying and then before I knew it we were laughing for an hour and a half. Love you KC... And of course thanks to sissa- who would literally try to kill MRSA if it was a person :) Okay and last two ppl in this note- Paul for coming to see my apt finally- and Luke for being the most intense listener I have ever seen haha
love you all
thanks for reading.
KAB
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